UK Mum, 29, Trapped in Own Body by Rare Guillain-Barré Syndrome
Mum's Guillain-Barré Nightmare: Trapped in Own Body

A young mother from the UK has described the terrifying experience of being left trapped inside her own body after developing a rare and rapidly progressing illness that initially confused medical professionals.

A Rapid and Terrifying Decline

Rebecca Louise Love, a 29-year-old makeup artist and mother of two, first noticed a persistent sensation of pins and needles in her feet. After roughly a week, she began to feel increasingly weak. Simple tasks became monumental challenges; she found herself unable to rise from the sofa, struggled to get out of the bath, and was plagued by excruciating pain in her back and pelvis. Walking soon became difficult.

Concerned, Rebecca visited her local emergency department but was sent home after several hours of tests yielded no clear answers. The situation deteriorated dramatically the very next day. "The following day, when I woke up in the morning, I could not move at all, and every time I tried to, it was pain as I've never felt before," she recounted. An ambulance was called, and she was admitted to hospital, where her condition worsened at an alarming rate.

Diagnosis and Fight for Survival

Rebecca was soon diagnosed with Guillain–Barré syndrome, a serious autoimmune disorder where the body's immune system mistakenly attacks the peripheral nerves. This can affect sensation, movement, and critical functions like breathing and heart rate. "I was unable to sit up or move my arms or legs," she said. "My children would come to visit and hug me, and I couldn't even hug them back."

The paralysis spread to her face, leaving her barely able to speak. Her vision blurred, and she began to struggle severely with breathing and swallowing, necessitating a move to the Intensive Care Unit (ICU). A feeding tube was fitted, and she required oxygen support. Doctors warned that if her breathing continued to fail, they might have to place her in a medically induced coma.

The Long Road to Recovery

Treatment began with immunoglobulin therapy, which helps to moderate the immune system's attack. Recovery was painstakingly slow. Rebecca had to relearn the most basic functions. "I still could not close my eyes or blink or smile. I also couldn't move my mouth or my legs and arms," she explained. With dedicated physiotherapy, she began to regain strength and confidence, celebrating each small victory, such as moving her hands again.

After eight weeks in hospital, Rebecca was finally able to return home. Her journey, however, is ongoing. "I am not my 'normal' self as I still struggle with some daily tasks, have pain often and still can't feel my feet properly," she shared. The constant pins and needles remain, but her ability to walk has returned. She continues to attend medical appointments, acknowledging that full recovery may be a long process.

Reflecting on her ordeal, Rebecca concluded with a powerful message: "It's taught me so much about myself and life, and I know now to 100 percent listen to my body." Her story highlights the sudden and devastating nature of Guillain–Barré syndrome, for which the exact cause remains unknown and there is no cure, though treatments can manage symptoms and aid recovery.