International Experts Advocate for New 'Profound Autism' Diagnosis
An international panel of medical and psychological experts is urging the introduction of a groundbreaking new diagnosis termed "profound autism." This proposed category aims to ensure that individuals with the highest support needs are not overlooked in critical areas such as healthcare services, scientific research, and government funding allocations.
Defining the Criteria for Profound Autism
The diagnosis would specifically apply to autistic children aged eight years and older who exhibit little to no functional language skills, possess an IQ below 50, and require round-the-clock supervision due to their complex needs. Researchers argue that this precise definition would enable governments and service providers to plan more effectively, ultimately leading to improved life outcomes for this vulnerable group.
An influential Australian study, which informed the panel's recommendation, found that approximately 24 per cent of autistic children could meet these stringent criteria. This subgroup is more likely to display behaviours that pose safety risks, highlighting the urgent need for targeted interventions and support structures.
Challenges and Considerations in Implementation
However, the proposal faces several significant challenges. These include potential mismatches with existing diagnostic levels in current medical frameworks, the necessity for repeat assessments due to the age threshold of eight years, and the critical importance of introducing the new category using careful, inclusive language to avoid stigma.
Experts emphasise that a thoughtful rollout is essential to ensure that the diagnosis serves as a tool for empowerment rather than exclusion, fostering better resource allocation and personalised care plans for those with the most profound needs.
