ITV presenter Cat Deeley has come under fire for what has been described as an 'inappropriate' choice of words during a discussion about former Little Mix star Jesy Nelson's twin daughters.
Disability Advocate Calls Out 'Normal Lives' Phrase
The controversy unfolded during the Thursday 8 December episode of This Morning. Deeley was speaking with Nelson, who recently revealed her twins have been diagnosed with Spinal Muscular Atrophy (SMA) Type 1, a genetic condition causing progressive muscle weakness.
Deeley remarked that "disabled children can live normal lives" if a newborn screening for SMA, which Nelson is campaigning for, were implemented. This comment prompted a swift response from disability advocate and TV presenter Sophie Morgan.
Morgan reshared a post from disabled Guardian writer Frances Ryan, which stated: "I'm sure @catdeeley means nothing but kindness here but worth noting the kids 'could have lived normal lives' is not an appropriate phrase."
The critique highlighted that while disabled children can indeed have careers, relationships, and friendships, they often face significant structural barriers and physical challenges. Ryan's post emphasised the need for disabled journalists and producers in media to ensure nuanced discussions informed by lived experience.
The Campaign for 36p Screening
The core of Jesy Nelson's appearance on the show was to campaign for the introduction of a simple SMA blood test at birth in the UK. She revealed the test costs just 36p and is already standard practice in over 40 countries, including the United States since 2023.
Both Nelson and Deeley agreed it seemed "ridiculous" not to implement such a low-cost test, given that early diagnosis and treatment are critical for improving outcomes for children with SMA. The condition affects motor neurons and can mean those diagnosed may never walk or support their own head.
Nelson's advocacy has resonated deeply with other parents. One follower, Katie Hughes, shared a post saying learning the test cost only 36p was "devastating and shocking," noting that sum "could have massively changed our little boy's life."
Broader Call for Representation
Sophie Morgan added her own comment to the shared critique, stressing the need for disabled people both in front of and behind the camera. "It takes a team," she wrote, pointing out that the on-screen discussion featured four non-disabled people analysing how disability affects lives.
The incident has sparked a wider conversation about language, representation, and the importance of involving disabled voices in media narratives about disability. While Deeley's intent was not questioned, the response underscores how phrasing can unintentionally perpetuate harmful narratives about life with a disability.
Jesy Nelson continues to use her platform to raise awareness about SMA and the urgent need for the UK to adopt the inexpensive newborn screening, hoping to change the future for other families.
