Lewis Moody, the former England rugby captain, has revealed plans to use AI-cloning technology to preserve his voice as he battles motor neurone disease (MND). The 47-year-old, who was diagnosed last year, has recorded his voice in a studio to create a digital archive that could help him communicate if he loses the ability to speak.
AI Technology for Communication
Moody explained that he initially delayed the process, thinking he did not need it, but realised the importance of leveraging advancements in AI. He said: "The more information you can have for the tools and the algorithms, then the better." The recordings also include videos for virtual avatars and content about his behaviours and thought processes, enabling AI to predict his thoughts.
The former England captain, capped 71 times, admitted that the fear of losing both speech and non-verbal communication was terrifying. However, knowing that technology could provide a better way to communicate has been "really sort of warming." He added: "The longer my symptoms are as they are, the more everything around me will advance."
Support and Coping
Moody, who won the Rugby World Cup with England in 2003, said the support from family, friends, and fans has helped him cope. He recalled a moment when a stranger stopped his car to give him a hug after his diagnosis was announced. "It was lovely actually," he said.
He acknowledged that processing the diagnosis has been challenging. "When you're diagnosed, you're just diagnosed. And we all know what that looks like from the end result," he said, referencing other rugby stars affected by MND, including Rob Burrow, who died in June 2024, and Doddie Weir, who died in November 2022. However, he emphasised that every individual's experience is different.
Physical Symptoms and Adaptation
Moody first noticed a pain in his shoulder and later experienced issues with his hand, particularly when cold. He described the mental struggle of adapting to each change. "A week or two ago I had loss of strength in the middle fingers, and that hit me really hard," he said, but he has learned to accept these moments and move forward.
Charity Cycle Ride
In June, Moody will join several members of England's 2003 World Cup-winning squad for a 500-mile charity cycle, finishing at the Premiership final at Twickenham. The ride supports the My Name'5 Doddie Foundation, which has raised £23.5 million for MND research. Moody's sons, Dylan (18) and Ethan (15), will also participate.
Moody described the ride as a way to make the most of his physical abilities while he still can. He recalled a previous ride where he had to stop due to fatigue, supported by teammates Martin Johnson and Martin Corry. "It was lovely to have them both there," he said.
Reframing Winning
Moody said he has reframed his concept of winning, focusing on purpose and impact. "Winning looks like I've got a wonderful purpose," he said. "I can just get to be the most focused in this space, and it brings with it a new energy and a new purpose."
