Former Little Mix star Jesy Nelson has offered a glimpse of joy amidst a challenging time, sharing a touching video of herself playing with one of her infant twin daughters. This comes just days after she bravely revealed that both her babies, Ocean and Story, have been diagnosed with a serious genetic condition.
A Devastating Diagnosis for the Twins
In a candid video posted on Sunday, January 10, 2026, Nelson disclosed that her daughters, born in May, have Spinal Muscular Atrophy Type 1 (SMA Type 1). The NHS describes this as a rare genetic disorder that leads to progressive muscle weakness. While there is no cure, treatments exist to help manage symptoms, with early detection being crucial for a better outcome.
Nelson's Campaign for Earlier NHS Testing
Following an outpouring of support from fans and fellow celebrities, Jesy made a powerful appearance on ITV's This Morning. She used the platform to urge the NHS to add a simple heel prick test to standard newborn screening. "The earlier it's found and treated, the less severe the symptoms are," she emphasised, highlighting a critical window for intervention that could change lives.
A Moment of Maternal Joy Shared Online
Now, the singer has shared a brighter moment from her family life. In a new Instagram clip, Jesy is seen laughing and engaging with one of her giggling twins. The adorable video serves as a poignant reminder of the love and happiness at the heart of her family, even as they navigate this difficult journey.
The condition, SMA, affects the nerves that control muscle movement. Nelson's advocacy aims to raise awareness and push for a change in UK health policy that could lead to earlier diagnoses for other infants, potentially mitigating the most severe effects of the disease.
