Colin Farrell's friendship with EB survivor Emma Fogarty
Emma Fogarty, 41, lives with severe Epidermolysis Bullosa. Her friendship with Colin Farrell has raised awareness and funds, defying her one-week life expectancy. Read her inspiring story.
Category : Search result: rare neurological disorder
Mum paralysed after 3-year wait for rare disease diagnosis
Victoria Johnston's life was upended when she collapsed at work. After a near three-year diagnostic delay for rare CIDP, she's campaigning for faster UK treatment. Read her story.
TV Star Opens Up on Rare Health Disorder Causing Muscle Weakness
Grey's Anatomy actor Steven W Bailey shares his Congenital Myasthenia Syndrome diagnosis in an open letter, discussing his symptoms and plans for increased on-screen representation. Read his full story.
The woman who tastes words like chocolate and pears
Monique Todorovski has lexical-gustatory synaesthesia, a rare condition where words trigger taste sensations. Discover how it shapes her world, from naming her children to everyday conversations.
Woman wakes up with a Geordie accent after nap
Verity Went, 28, woke from a nap with a thick Geordie accent due to rare Foreign Accent Syndrome. She now says her new voice is the 'real' her. Read her incredible story.
Woman wakes from nap with permanent Geordie accent
Verity Went, 28, woke from a nap slurring her words and speaking with a thick Geordie accent. Diagnosed with rare Foreign Accent Syndrome, she now says the new voice is the 'real' her. Read her incredible story.
Woman with rare 'butterfly' disorder defies odds at 41
Emma Fogarty, one of the oldest survivors of Epidermolysis Bullosa, shares her story of defying medical predictions and her unique bond with actor Colin Farrell. Discover her journey of pain, resilience, and hope.
Mum's instinct correct after baby's rare disorder dismissed
Vanessa Hickle's baby Easton had rare brain conditions. Doctors initially blamed 'new parent anxiety' and said he was just 'chubby'. She urges parents to trust their instincts.
Newborn's fight against rare HLH disease after sudden fever
A newborn baby's life turned upside down by a rare autoimmune disorder. His parents share their story and hope as he prepares for a bone marrow transplant. Read their emotional journey.
Dyspraxia causes 9x higher fall risk, study reveals
New research shows adults with dyspraxia are nine times more likely to fall frequently, yet the condition is ignored in UK fall prevention guidelines. Experts demand urgent action.
Teen's headaches lead to rare blood disorder diagnosis
Millie Fairley, 13, from Eastbourne, needs a stem cell donor after being diagnosed with aplastic anaemia. Her family and DKMS urge people to register as donors.
25-year-old chooses assisted dying after rare illness
Annaliese Holland, 25, shares her decision for assisted dying after a lifelong battle with a rare autoimmune disorder. Read her powerful story of pain and peace.
Celine Dion's Thanksgiving health update
Celine Dion delivers a positive health update on Instagram, sharing a heartfelt Thanksgiving message with fans while battling Stiff Person Syndrome. Discover her inspiring journey.
Jesse Jackson leaves hospital after neurological care
Civil rights icon Rev. Jesse Jackson has been released from a Chicago hospital following treatment for progressive supranuclear palsy. His family requests continued prayers during this time.
Rick Wakeman gives health update after brain surgery
Prog rock legend Rick Wakeman confirms successful shunt surgery for hydrocephalus. The 76-year-old plans to return to the stage for his 'Wakeman and Son' tour in March. Read his full recovery story.
Autoimmune Encephalitis: Body Attacks Brain
Discover how autoimmune encephalitis turns the immune system against the brain, causing severe symptoms. Learn about diagnosis challenges and treatment options for this rare condition.
Man's 'Year of Unraveling' from Brain-Attacking Immune System
A California man's immune system attacked his brain, causing memory loss and seizures. Discover his journey with autoimmune encephalitis and his path to recovery. Read his inspiring story.
Hitler's rare genetic sexual disorder uncovered
New DNA analysis reveals Adolf Hitler had Kallmann syndrome, a rare genetic condition impacting puberty. Discover the findings and what it means.
Footballer beats rare paralysis to run marathons
Relly Ladner was told she might never walk again after Guillain-Barré syndrome. Defying odds, she now runs marathons. Read her incredible recovery journey.
Woman lives normally despite missing brain part
Shocking medical case reveals woman living full life despite missing cerebellum - the brain region controlling motor skills, balance and coordination.
Woman born without cerebellum lives normal life
Doctors are stunned by a British woman born without her cerebellum who defied medical expectations to live a fully independent life, walking and talking normally.
Bullied for weight: Teen's rare genetic disorder revealed
A mother reveals how her daughter endured cruel bullying for years before doctors discovered her weight struggles were caused by rare Bardet-Biedl syndrome, exposing the hidden reality of genetic disorders.
Mum with rare dementia forgets children's names
The devastating story of Sarah, a mother with rare dementia who can no longer recognise her own children, as her family fights for access to revolutionary treatment that could save her.
Boy, 11, wakes up unable to walk or speak
A mother's terrifying ordeal as her healthy son suddenly develops rare neurological condition ADEM, sparking urgent NHS investigation into childhood illness.
Child's battle with rare disease stealing her ability to walk
The heartbreaking story of Isabelle Tate, a young girl from England fighting Charcot-Marie-Tooth disease, a rare genetic condition threatening her ability to walk and enjoy a normal childhood.
Teen's death from rare Charcot-Marie-Tooth disease
The heartbreaking story of Isabelle Tate, a vibrant teenager whose life was cut short by the little-known genetic condition Charcot-Marie-Tooth disease, sparking urgent calls for greater awareness and research funding.
Daughter, 21, dies after battle with rare neurological disorder
Isabelle Adora Tate's courageous battle against a devastating neurological condition ends at just 21, as her grieving mother pays emotional tribute to her 'beautiful warrior' daughter.
Hollyoaks star's real health scare mirrors soap storyline
Hollyoaks actress Jessica Fox reveals her terrifying real-life health battle with Functional Neurological Disorder, drawing parallels to her character Nancy Osborne's recent storyline.
Daughter's rare condition breaks hearts daily
Exclusive: The heartbreaking story of a family coping with their daughter's rare Cri Du Chat syndrome, revealing the daily challenges and emotional toll of caring for a child with complex needs.
Kelly Osbourne breaks down revealing health diagnosis
TV personality Kelly Osbourne breaks down while revealing her recent diagnosis with a rare neurological condition, sharing her fears and determination to raise awareness.
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