ChronicleLive readers have responded in droves to reports highlighting a lack of support following autism or ADHD diagnoses in Gateshead. A Healthwatch report, covered by the Local Democracy Reporting Service last week, found that residents aged 18-24 and over 50 continue to face significant barriers to accessing support after diagnosis.
Survey reveals dismissal of symptoms
The report included a survey that found 37% of over-50s felt their GP had “dismissed” their symptoms or “did not offer them any advice.” For the 18-24 age group, support available at work or educational institutions was often described as “short-term and disrupted.” Readers shared their own experiences, with one commenting: “Sadly, this isn’t unique to Gateshead. It’s something I hear about time and time again. A diagnosis can bring so much relief and understanding, but for many people, that’s where the support seems to end.”
Another reader, a late-diagnosed clinical professional, added: “We are aware of this issue, and I see it. The reality is, there is no one-size-fits-all when it comes to neurodiversity, and there is no instruction book or guidelines.”
Post-diagnosis support gaps
The NHS defines autism as a condition affecting communication, understanding, thinking, learning, and sensitivity to sensory input. ADHD, common among autistic individuals, impacts attention spans, forgetfulness, and task completion. One reader noted: “Receiving an autism or ADHD diagnosis later in life can answer questions you’ve had for decades... but for many people, the diagnosis is where the support ends.”
According to the National Autism Society, at least 700,000 adults and children in the UK have autism. The Lancet and NICE estimate 2.6 million adults and children have ADHD.
Readers share personal struggles
One reader shared: “I’ve had zero support after my diagnosis in 2020 for autism, and I am still waiting for my diagnosis for ADHD from the NHS. I had to go private to get my ADHD assessment for adjustments at work. But no counselling, no support with how to deal with things and unmasking.”
Another added: “It’s not much better elsewhere. I got my diagnosis a few years ago after about 3 years of waiting. I was given medication (which there seem to be endless issues sourcing) and pretty much left to it. No ongoing support, just a 5-minute conversation that reframes your entire life.”
Readers emphasised that charities and community organisations are filling a critical gap, but should not be solely responsible for post-diagnostic support.
