Jesy Nelson Shares Touching Video of Twin Daughters Amid Health Struggle
Former Little Mix singer Jesy Nelson has posted another emotional video showcasing the special bond between her twin daughters, Ocean Jade and Story Monroe. The 34-year-old artist, who welcomed her premature babies in May 2025 with ex-fiancé Zion Foster, has been documenting their journey after revealing last month that both girls were diagnosed with Spinal Muscular Atrophy Type 1 (SMA1).
Devastating Diagnosis and Daily Challenges
The genetic neuromuscular disease represents the most severe form of Spinal Muscular Atrophy, weakening muscles by affecting motor nerve cells in the spinal cord. Without medical intervention, life expectancy for Type 1 SMA is typically less than two years. Jesy has been candid about the diagnosis in her documentary Life After Little Mix and regularly shares updates about their health battle on social media platforms.
The recent video, set to A-D-M-T's song Best Friend, shows Ocean and Story reaching out to hold hands while lying on play mats in matching pink and white onesies. This heartwarming moment comes after Jesy recently revealed she burst into tears when special feeding chairs arrived for the twins.
Medical Needs and Emotional Toll
As SMA1 causes progressive muscle weakness and wasting, Ocean and Story require feeding tubes due to severe swallowing, sucking and breathing difficulties. The specially designed chairs provide essential postural support, but their arrival brought their mother to tears as she described it as 'another reminder of another obstacle we have to tackle' in their ongoing health battle.
Jesy explained to the Daily Mail that caring for the twins is an emotional rollercoaster, with some days being 'really f***ing s***' and others slightly lighter. She described the medical procedures her babies must endure each day, saying 'when they're crying and screaming, it feels like I'm hurting them' despite knowing the interventions are necessary for their wellbeing.
Campaigning for NHS Screening Changes
Alongside caring for her daughters, Jesy is actively campaigning for the NHS to expand the standard heel prick test to include screening for SMA1. She has stated that had her twins received the test - which costs approximately £1 - and begun treatment earlier, their leg function might have been preserved.
The star has already achieved significant progress with a petition reaching over 100,000 signatures, compelling Parliament to consider the matter for debate. The campaign calls for government funding and fast-tracking of the screening process to include SMA1 in the newborn blood spot test.
Putting Music Career on Hold
Jesy has revealed that she has temporarily parked her music career to focus entirely on her daughters' needs. Appearing on Heart FM's Breakfast show, she told Amanda Holden and Jamie Theakston: 'Look listen I'd never say never to music, but for me, my girls are my main focus. They are my whole heart and soul and my main focus, and I want to continue advocating for them.'
She emphasized that getting the heel prick test changed and strengthening her daughters' health will determine their future, making this her primary concern. Jesy described her daily life as intensely focused on medical care, admitting she never expected to be providing such comprehensive medical support for her children.
Hope and Resilience
Despite the tragic prognosis that Ocean and Story may not live beyond age two without treatment, Jesy remains hopeful. Speaking to Jamie Laing on his Great Company podcast, she expressed belief that her babies would defy the odds now that they are receiving proper medical attention.
'My girls are the strongest, most resilient babies and I really believe that they are going to defy all the odds,' she stated, acknowledging the reality of their condition while maintaining optimism about their future prospects with ongoing treatment and care.
