Jesy Nelson has provided an update on her nine-month-old twin daughters, who are being treated at Great Ormond Street Hospital for Spinal Muscular Atrophy (SMA). The former Little Mix star posted images on Instagram showing Ocean Jade and Story Monroe wearing leg splints, and a video of one twin playfully taking the other's dummy.
Nelson described the hospital visits as an "educational experience", adding that she felt sad when collecting the splints because the babies' feet need to be flattened out. The twins were diagnosed with Type 1 SMA, the most severe form of the rare genetic condition, which progressively weakens muscles and, if untreated, carries a life expectancy of less than two years.
The singer has been campaigning for SMA1 to be included in routine newborn screenings on the NHS. Her petition has surpassed 100,000 signatures, meaning it will be debated in the House of Commons. She expressed gratitude to supporters, saying the milestone was a "first hurdle" and that together they would make change.
Scotland recently became the first UK nation to screen babies for SMA, a development Nelson called "bittersweet". She said she would keep fighting for similar screening in England. In her Prime Video docuseries about pregnancy and motherhood, she and her family decided to continue filming after the diagnosis, believing they had to make the best of the situation.
