Ronville Lapping, a 64-year-old former bus driver from Tredegar, has spoken about how his life changed completely after a sudden motor neurone disease (MND) diagnosis. Initially, he dismissed his clumsiness, but doctors later told him he had just 10 days to live.
From clumsiness to diagnosis
Ronville, a dad-of-two, first noticed a weakness in his hands and began dropping objects frequently. A doctor initially diagnosed carpal tunnel syndrome. However, his condition worsened, and he started falling. His daughter urged him to return home from his caravan in Aberystwyth, as his legs became heavy and walking became difficult.
In the summer of 2022, he returned to his GP and was referred to neurology. Three months later, he received the life-changing diagnosis of MND. He was diagnosed with progressive muscular atrophy, a rarer type of MND affecting lower motor neurones. For the first year, he continued relatively normally, but around a year later, he lost his driving licence, his weight dropped to just eight stone, and doctors advised he had just 10 days to live.
Accepting support
Ron found it difficult to accept help at first. When offered support from local charity Hospice of the Valleys, he initially refused, fearing it meant the end. He recalls telling Emma Priest, who works for the hospice, "I'm not ready for that yet." After encouragement from his ex-wife, he called Emma back, a decision he now says was crucial.
Hospice of the Valleys provided night sitters, and this support continued for two years before an NHS complex care plan was introduced. Ron believes the night sitters significantly improved his wellbeing. "I truly believe if it wasn't for the Hospice of the Valleys, I wouldn't be here today," he said.
Living well with MND
Emma continues to support Ron as his needs change, providing emotional and practical help, ensuring he has the right medication and equipment. The hospice also arranged for a complementary therapist to provide Reiki sessions, which Ron finds relaxing and helpful for his anxiety.
Ron now enjoys days out with his children and remains positive. "I'm a very positive person," he said. "I don't dwell on it." Emma has helped Ron put an advanced care plan in place and ensured his home is adjusted so he can continue living there. She also helped him get a better-fitting breathing mask, which has improved his condition. "It's been lovely to build a relationship with Ron," she said.
