Colin Farrell's friendship with EB survivor Emma Fogarty
Emma Fogarty, 41, lives with severe Epidermolysis Bullosa. Her friendship with Colin Farrell has raised awareness and funds, defying her one-week life expectancy. Read her inspiring story.
Category : Search result: rare neuromuscular disorder
TV Star Opens Up on Rare Health Disorder Causing Muscle Weakness
Grey's Anatomy actor Steven W Bailey shares his Congenital Myasthenia Syndrome diagnosis in an open letter, discussing his symptoms and plans for increased on-screen representation. Read his full story.
Grey's Anatomy actor Steven W. Bailey diagnosed with CMS
Grey's Anatomy actor Steven W. Bailey announces a congenital myasthenic syndrome (CMS) diagnosis after five years, embracing an electric wheelchair and advocating for disability representation in showbiz.
Grey's Anatomy Actor Steven W. Bailey Diagnosed with Rare Condition
Grey's Anatomy actor Steven W. Bailey, known as Joe the bartender, announces a congenital myasthenic syndrome (CMS) diagnosis after five years. He shares his journey and hopes for an inclusive industry.
Woman wakes up with a Geordie accent after nap
Verity Went, 28, woke from a nap with a thick Geordie accent due to rare Foreign Accent Syndrome. She now says her new voice is the 'real' her. Read her incredible story.
Woman wakes from nap with permanent Geordie accent
Verity Went, 28, woke from a nap slurring her words and speaking with a thick Geordie accent. Diagnosed with rare Foreign Accent Syndrome, she now says the new voice is the 'real' her. Read her incredible story.
Woman with rare 'butterfly' disorder defies odds at 41
Emma Fogarty, one of the oldest survivors of Epidermolysis Bullosa, shares her story of defying medical predictions and her unique bond with actor Colin Farrell. Discover her journey of pain, resilience, and hope.
Mum's instinct correct after baby's rare disorder dismissed
Vanessa Hickle's baby Easton had rare brain conditions. Doctors initially blamed 'new parent anxiety' and said he was just 'chubby'. She urges parents to trust their instincts.
10-Minute Exercise Improves Teen Agility and Balance
A simple 10-minute neuromuscular training programme can significantly improve teenagers' agility, balance, and muscle coordination, countering the 'motor-skill vulnerability' of puberty.
Newborn's fight against rare HLH disease after sudden fever
A newborn baby's life turned upside down by a rare autoimmune disorder. His parents share their story and hope as he prepares for a bone marrow transplant. Read their emotional journey.
Teen's headaches lead to rare blood disorder diagnosis
Millie Fairley, 13, from Eastbourne, needs a stem cell donor after being diagnosed with aplastic anaemia. Her family and DKMS urge people to register as donors.
25-year-old chooses assisted dying after rare illness
Annaliese Holland, 25, shares her decision for assisted dying after a lifelong battle with a rare autoimmune disorder. Read her powerful story of pain and peace.
Celine Dion's Thanksgiving health update
Celine Dion delivers a positive health update on Instagram, sharing a heartfelt Thanksgiving message with fans while battling Stiff Person Syndrome. Discover her inspiring journey.
Hitler's rare genetic sexual disorder uncovered
New DNA analysis reveals Adolf Hitler had Kallmann syndrome, a rare genetic condition impacting puberty. Discover the findings and what it means.
Footballer beats rare paralysis to run marathons
Relly Ladner was told she might never walk again after Guillain-Barré syndrome. Defying odds, she now runs marathons. Read her incredible recovery journey.
Bullied for weight: Teen's rare genetic disorder revealed
A mother reveals how her daughter endured cruel bullying for years before doctors discovered her weight struggles were caused by rare Bardet-Biedl syndrome, exposing the hidden reality of genetic disorders.
Mum with rare dementia forgets children's names
The devastating story of Sarah, a mother with rare dementia who can no longer recognise her own children, as her family fights for access to revolutionary treatment that could save her.
Boy, 11, wakes up unable to walk or speak
A mother's terrifying ordeal as her healthy son suddenly develops rare neurological condition ADEM, sparking urgent NHS investigation into childhood illness.
Child's battle with rare disease stealing her ability to walk
The heartbreaking story of Isabelle Tate, a young girl from England fighting Charcot-Marie-Tooth disease, a rare genetic condition threatening her ability to walk and enjoy a normal childhood.
Teen's death from rare Charcot-Marie-Tooth disease
The heartbreaking story of Isabelle Tate, a vibrant teenager whose life was cut short by the little-known genetic condition Charcot-Marie-Tooth disease, sparking urgent calls for greater awareness and research funding.
Daughter's rare condition breaks hearts daily
Exclusive: The heartbreaking story of a family coping with their daughter's rare Cri Du Chat syndrome, revealing the daily challenges and emotional toll of caring for a child with complex needs.
Rare 50p Coin Sells for £113 at Auction
A scarce 2009 Kew Gardens 50p coin has sold for over double its face value in a recent auction, sparking renewed interest in coin collecting across the UK.
Woman speaks with Thai accent after stroke
A Hampshire woman developed Foreign Accent Syndrome after suffering a stroke, causing her to speak with a Thai accent despite never visiting Thailand. Medical experts explain this rare neurological condition.
Aaron Chalmers' son hospitalised with rare disorder
Former Geordie Shore personality Aaron Chalmers reveals his young son Oakley faces unexpected hospital procedure while battling rare genetic condition that requires ongoing medical care.
Mum's heartbreak as son battles rare chromosome disorder
Exclusive: Mother's emotional journey as her son battles rare chromosome disorder and the family's desperate search for answers in the UK healthcare system.
US Bets Big to Break China's Rare Earth Monopoly
The Biden administration makes unprecedented investments in Western rare earth companies to secure critical minerals and challenge China's market dominance in green technology.
Woman's ribs pop out when she laughs due to rare condition
A young woman from Manchester lives in constant pain with a rare condition that causes her ribs to dislocate when she laughs, coughs or even breathes deeply, leaving her unable to work or enjoy simple pleasures.
Rare 50p Coin Could Be Worth Over £500
Discover how a rare 2009 Kew Gardens 50p coin hiding in your pocket change could be worth a small fortune to collectors.
Girl's constant hunger battle with rare genetic condition
Two-year-old Ivy's constant hunger battles a rare genetic disorder called Prader-Willi syndrome, leaving her parents in a 24/7 vigil against life-threatening complications.
Woman wakes from coma speaking fluent French
In an extraordinary medical case, Lisa Millar from Largs, Scotland, awoke from a two-week coma speaking fluent French despite barely remembering the language since school. Doctors are baffled by this rare phenomenon of Foreign Accent Syndrome.
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