Former Little Mix singer Jesy Nelson has announced she is launching a public petition to campaign for a crucial change to newborn health checks in the UK. This comes after her twin daughters, Ocean and Story, were diagnosed with a severe genetic condition.
A Mother's Determination to Fight
The 34-year-old star received an outpouring of public support after revealing on Sunday, 4th January 2026, that her twins have Spinal Muscular Atrophy Type 1 (SMA Type 1). This rare disease causes progressive muscle weakness and is the most severe form of the condition a baby can face. Doctors have told Jesy her daughters may never walk.
In a follow-up video shared on her Instagram story, Jesy expressed her gratitude for the support and outlined her next steps. "I just wanted to let you guys know that I am starting a petition to try and get the SMA on the newborn screening heel prick testing from birth," she said. "I am so determined to make this happen. So I'm gonna fight as much as I can."
The Critical Gap in Current NHS Screening
Jesy's campaign highlights a significant gap in the UK's national screening programme. Currently, the NHS offers a heel prick test for newborns at five days old, which checks for nine serious health conditions. However, it does not include screening for SMA.
This is despite the fact that early diagnosis is absolutely critical. The earlier treatment begins, the better the outcome for affected children, potentially saving lives and preventing irreversible muscle damage. NHS Scotland has announced plans to add SMA to its newborn screening in 2026, but NHS England has yet to follow suit.
Jesy believes a simple test at birth could have made a profound difference for her own family. She explained that initial concerns about her twins' lack of leg movement were dismissed, as the babies were premature and she was advised not to compare them to others. It took months of hospital visits and tests before they finally received their diagnosis and could start treatment.
Raising Awareness and Taking Action
Using her platform, Jesy now aims to raise awareness of SMA's early signs and champion systemic change. She is scheduled to appear on ITV's This Morning to discuss her family's experience in more detail.
"We've got a long way to go," Jesy told her followers, "and I appreciate you all so much." Her petition seeks to mobilise public support to pressure health authorities into adding SMA to the standard newborn screening panel across England, ensuring every baby has the best possible chance at early intervention.
The singer's heartfelt campaign underscores a vital public health issue, turning a personal family tragedy into a powerful drive for change that could benefit countless future newborns.
