The community of Chesterfield is in mourning this week following the tragic death of 26-year-old Dezi Freeman, a young father known for his immense courage in battling a devastatingly rare medical condition.
Mr. Freeman, who lived with the extraordinarily rare Prune Belly Syndrome, was found deceased at his home on Harewood Road in Newbold on September 18th, 2022. An inquest into his death has now concluded, shedding light on the struggles he faced throughout his life.
A Lifelong Medical Battle
Prune Belly Syndrome is a congenital disorder affecting approximately 1 in 40,000 births. It left Dezi with underdeveloped abdominal muscles, a distinctive wrinkled appearance to his stomach, and severe, life-long complications with his urinary tract and kidneys.
His mother, Lisa Freeman, poignantly described her son's life to the coroner's court. "He was in and out of hospital his entire life", she said, painting a picture of a relentless medical journey. His body was a testament to his fight, covered in scars from countless surgeries and medical procedures aimed at managing his complex condition.
Remembering a Devoted Father
Beyond his medical struggles, Dezi is remembered as a doting father to his young daughter and a man with a vibrant personality. "He was the most loving son and brother and an amazing dad to his little girl", Mrs. Freeman stated, her words echoing the profound loss felt by his family.
Despite the immense physical challenges and constant pain, his family emphasised that Dezi "fought right until the very end", showcasing a resilience that defined his character.
The Coroner's Conclusion
Assistant Coroner for Derbyshire, Louise Pinder, recorded a conclusion of death by natural causes. The medical cause of death was formally listed as uraemia – a terminal complication of kidney failure – resulting from his long-standing Prune Belly Syndrome.
The inquest heard that Dezi was known to multiple specialist services within the NHS due to the complexity of his needs. His passing highlights the severe challenges faced by individuals living with profound rare diseases and the immense strength they show every day.
