Jesy Nelson has shared an emotional update on her twin daughters, revealing her dream for their future as they navigate life with Spinal Muscular Atrophy (SMA). The singer posted a photo on Instagram cuddling one of her toddlers on a park swing, captioning it: "My dream is to one day push my girls on a swing all by themselves. But for now we enjoy it just like this," adding a crying face and white heart emoji.
Outpouring of Support
The post received an overwhelming response, with Jess Wright commenting three red heart emojis. Another follower wrote: "You are the best mother. Keep fighting for your girls." Jesy shares twin daughters Ocean Jade and Story Monroe with musician Zion Foster. The girls were born at 31 weeks and five days in May 2025 and diagnosed with SMA in January 2026, meaning they are unlikely to develop the ability to walk.
SMA and Campaign for Newborn Screening
According to the NHS, Type 1 SMA means sufferers cannot sit without support and have difficulties with feeding and breathing. Jesy has been campaigning for newborn testing to be rolled out across the NHS since the diagnosis. Last month, she admitted being "heartbroken and outraged" after attending a parliamentary debate on SMA screening, where it was decided that only 72% of the country will have access to newborn screening when introduced in October.
Struggles During Heatwave
In a heartbreaking update during a recent heatwave, Jesy revealed her heart was "broken into a million pieces" as the one-year-old tots must wear spinal suits. She wrote: "I've cried all day. Imagine having to wear a spinal jacket and splints in this heat... But if I don't put them in these every day, their spines and feet will only deteriorate and get worse." She added: "Once again, no future SMA babies need to suffer like this if they are given a heel prick test and treatment from birth!"
