Imagine waking up every day to find your skin peeling off in flakes, no matter how much you moisturise or care for it. For one woman, this is her reality due to a rare genetic condition called ichthyosis.
She describes her life as a constant battle against her own body, where even simple tasks like shaking hands or wearing certain fabrics become painful challenges. "My skin is always shedding," she explains. "It's like having severe sunburn that never heals."
What is Ichthyosis?
Ichthyosis is a group of genetic skin disorders characterised by dry, thickened, and scaly skin. In severe cases, the condition can lead to deep cracks, infections, and mobility issues.
The woman shares how she must:
- Apply emollients multiple times a day
- Avoid extreme temperatures
- Deal with constant itching and discomfort
- Face public stares and misunderstandings
The Emotional Toll
Beyond the physical symptoms, she opens up about the psychological impact. "People assume I'm contagious or don't wash properly," she says. "The hardest part is dealing with the stares and whispers."
Despite these challenges, she remains determined to raise awareness about the condition and help others facing similar struggles.
