Toxic shock syndrome (TSS) is a rare but life-threatening bacterial infection often associated with tampon use, but cases can occur in anyone, including men and children. In the UK, non-menstrual TSS is now more common than menstrual-related cases, according to health experts.
Alex Lewis, now 33, contracted TSS in 2013 after developing flu-like symptoms. The infection, caused by Streptococcus bacteria, led to multiple organ failure and the amputation of all four limbs and part of his face. He had never used a tampon.
His ordeal began with what seemed like a common cold, but quickly escalated to blood in his urine and purple patches on his skin. Doctors initially misdiagnosed Weil's disease before a physician familiar with TSS identified the correct condition.
Alex was placed in a coma with a 3% chance of survival. When he awoke, surgeons informed him that his left arm and both feet needed amputation. Later, they also removed half his face, including his lips, leaving his mouth the size of a 5p coin.
Despite the trauma, Alex says he is grateful to be alive. His story highlights that TSS can affect anyone with an open wound, certain infections, or those using barrier contraceptives, not just tampon users.
