Jesy Nelson's new documentary has revealed the singer's heartbreak as she raises her twin daughters, who were diagnosed with a rare condition at birth. The former Little Mix star, 34, welcomed Ocean Jade and Story Monroe Nelson-Foster last year.
The twins were subsequently diagnosed with Spinal Muscular Atrophy (SMA), a rare condition causing muscle weakness and wastage. The documentary, titled Jesy Nelson: Life Changing, chronicles her campaign to secure SMA testing at birth across the UK.
In the documentary, Jesy's mother Janice shows a spare room in the star's home to the cameras. Half the space is occupied by medical equipment required to feed the twins, while the remainder houses toys they are unable to enjoy.
Janice explains: "This is actually quite organised but it is all their stuff they can't use and all their medical stuff, their feeding tubes and stuff, but it upsets Jesy if she sees it downstairs, so we keep it up here."
She then produces a brand-new cuddly elephant rocking chair, adding: "It is all things we bought like toys, and nothing was suitable because everything has to be specialised because of their spines. I said, 'you should donate them to the hospital and things, they need it'. Hopefully, someone else will get the benefit of them."
Campaigning for Change
In the new film, Jesy is documented travelling to Scotland in March this year, when health authorities introduced testing for SMA at birth. Jesy embraces one of the healthcare professionals conducting the screening and is thrilled by the outcome, though she acknowledges the moment carries mixed emotions, as this straightforward test would have identified Ocean and Story's condition at birth, enabling immediate treatment rather than months later when more damage had been done.
She tells the medic: "These babies are going to have a different life to our children, it is amazing what you are doing."
Jesy then departs the clinic with tears streaming down her face and says: "I feel, like, stupid getting upset but part of me just feels angry. I know this is amazing but it is sh** at the same time. I feel so much resentment as well. It is just frustrating."
Daily Challenges and Hope
Jesy's twins are shown using specialist seating and undergoing therapy in hopes they may eventually achieve independent mobility. But currently they are still sometimes unable to be bottle-fed, meaning that Jesy has to use a tube for mealtimes.
The documentary concludes on a positive note as the twins mark their first birthday and Story utters "Mama" for the very first time.
Born in May 2025, the twins saw Jesy and her partner Zion remain together throughout the initial six months, though the couple have since gone their separate ways. Jesy said: "We still get on. There's no bad feeling. My main priority is them, so, like, I just want to be the best mum for them. I want to have the best energy, and I want to be positive. We were both dealing with this situation completely differently, so I decided we would be better off apart."
