Colin Farrell's friendship with EB survivor Emma Fogarty
Emma Fogarty, 41, lives with severe Epidermolysis Bullosa. Her friendship with Colin Farrell has raised awareness and funds, defying her one-week life expectancy. Read her inspiring story.
Category : Search result: rare autoimmune disorder
Mum paralysed after 3-year wait for rare disease diagnosis
Victoria Johnston's life was upended when she collapsed at work. After a near three-year diagnostic delay for rare CIDP, she's campaigning for faster UK treatment. Read her story.
Mum, 35, paralysed after rare CIDP diagnosis delay
Victoria Johnston, 35, was fit and healthy when she collapsed and was paralysed. Her 3-year battle for a CIDP diagnosis highlights UK treatment delays compared to the US. Read her story.
TV Star Opens Up on Rare Health Disorder Causing Muscle Weakness
Grey's Anatomy actor Steven W Bailey shares his Congenital Myasthenia Syndrome diagnosis in an open letter, discussing his symptoms and plans for increased on-screen representation. Read his full story.
Woman wakes up with a Geordie accent after nap
Verity Went, 28, woke from a nap with a thick Geordie accent due to rare Foreign Accent Syndrome. She now says her new voice is the 'real' her. Read her incredible story.
Woman wakes from nap with permanent Geordie accent
Verity Went, 28, woke from a nap slurring her words and speaking with a thick Geordie accent. Diagnosed with rare Foreign Accent Syndrome, she now says the new voice is the 'real' her. Read her incredible story.
Woman with rare 'butterfly' disorder defies odds at 41
Emma Fogarty, one of the oldest survivors of Epidermolysis Bullosa, shares her story of defying medical predictions and her unique bond with actor Colin Farrell. Discover her journey of pain, resilience, and hope.
Mum's instinct correct after baby's rare disorder dismissed
Vanessa Hickle's baby Easton had rare brain conditions. Doctors initially blamed 'new parent anxiety' and said he was just 'chubby'. She urges parents to trust their instincts.
Newborn's fight against rare HLH disease after sudden fever
A newborn baby's life turned upside down by a rare autoimmune disorder. His parents share their story and hope as he prepares for a bone marrow transplant. Read their emotional journey.
Teen's headaches lead to rare blood disorder diagnosis
Millie Fairley, 13, from Eastbourne, needs a stem cell donor after being diagnosed with aplastic anaemia. Her family and DKMS urge people to register as donors.
25-year-old chooses assisted dying after rare illness
Annaliese Holland, 25, shares her decision for assisted dying after a lifelong battle with a rare autoimmune disorder. Read her powerful story of pain and peace.
Celine Dion's Thanksgiving health update
Celine Dion delivers a positive health update on Instagram, sharing a heartfelt Thanksgiving message with fans while battling Stiff Person Syndrome. Discover her inspiring journey.
Autoimmune Encephalitis: Body Attacks Brain
Discover how autoimmune encephalitis turns the immune system against the brain, causing severe symptoms. Learn about diagnosis challenges and treatment options for this rare condition.
Man's 'Year of Unraveling' from Brain-Attacking Immune System
A California man's immune system attacked his brain, causing memory loss and seizures. Discover his journey with autoimmune encephalitis and his path to recovery. Read his inspiring story.
Hitler's rare genetic sexual disorder uncovered
New DNA analysis reveals Adolf Hitler had Kallmann syndrome, a rare genetic condition impacting puberty. Discover the findings and what it means.
Footballer beats rare paralysis to run marathons
Relly Ladner was told she might never walk again after Guillain-Barré syndrome. Defying odds, she now runs marathons. Read her incredible recovery journey.
Ruth Wilson reveals rare disease diagnosis after 5-year struggle
Emmy-winning actress Ruth Wilson opens up about her debilitating mystery illness and the frustrating five-year search for answers that led to a rare disease diagnosis.
Bullied for weight: Teen's rare genetic disorder revealed
A mother reveals how her daughter endured cruel bullying for years before doctors discovered her weight struggles were caused by rare Bardet-Biedl syndrome, exposing the hidden reality of genetic disorders.
Mum with rare dementia forgets children's names
The devastating story of Sarah, a mother with rare dementia who can no longer recognise her own children, as her family fights for access to revolutionary treatment that could save her.
Boy, 11, wakes up unable to walk or speak
A mother's terrifying ordeal as her healthy son suddenly develops rare neurological condition ADEM, sparking urgent NHS investigation into childhood illness.
Child's battle with rare disease stealing her ability to walk
The heartbreaking story of Isabelle Tate, a young girl from England fighting Charcot-Marie-Tooth disease, a rare genetic condition threatening her ability to walk and enjoy a normal childhood.
Teen's death from rare Charcot-Marie-Tooth disease
The heartbreaking story of Isabelle Tate, a vibrant teenager whose life was cut short by the little-known genetic condition Charcot-Marie-Tooth disease, sparking urgent calls for greater awareness and research funding.
Laila Rouass reveals incurable autoimmune disease battle
Former Footballers' Wives actress Laila Rouass opens up about her devastating diagnosis of an incurable condition that left her hospitalised and facing permanent health challenges.
NHS approves revolutionary MS treatment for patients
Groundbreaking therapy offering hope to multiple sclerosis patients receives NHS approval, promising to transform treatment outcomes across the UK healthcare system.
T-cell therapy breakthrough transforms MS treatment
Groundbreaking T-cell therapy transforms life of multiple sclerosis patient in Hertfordshire, offering new hope for progressive MS treatment through innovative immunotherapy approach.
Miss Nevada USA makes history as first alopecia pageant contestant
In a groundbreaking moment for pageant diversity, Miss Nevada USA Mary Sickler is set to become the first contestant with alopecia to compete for the Miss USA crown, challenging traditional beauty standards.
NHS rolls out revolutionary MS 'game-changer' therapy
The NHS launches groundbreaking stem cell treatment for multiple sclerosis patients, offering new hope with transformative results already changing lives across Britain.
UK First: Teacher Gets Revolutionary MS Therapy
A British teacher has become the first UK patient to receive a revolutionary new treatment for multiple sclerosis, marking a significant milestone in neurological healthcare that could transform lives.
Teen's unbearable itch reveals rare liver disease
A teenager's persistent itching that kept her awake for nights led doctors to discover a rare autoimmune liver disease that could have been fatal without treatment.
Gluten-Free Boom Masks Coeliac Diagnosis Crisis
Groundbreaking research exposes critical gaps in coeliac disease detection, with thousands potentially suffering undiagnosed despite gluten-free diet popularity.
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