Emma Fogarty, one of the oldest survivors of Epidermolysis Bullosa, shares her story of defying medical predictions and her unique bond with actor Colin Farrell. Discover her journey of pain, resilience, and hope.
Hollywood star Colin Farrell reveals his profound friendship with Emma Fogarty, who lives with the painful skin condition Epidermolysis Bullosa, in a powerful new book highlighting courage and resilience.
A courageous 12-year-old boy endures unimaginable pain due to a rare genetic disorder causing his skin to tear at the slightest touch. His family shares their heartbreaking journey and hopes for better treatments.
A groundbreaking gene therapy trial at Great Ormond Street Hospital is transforming lives for children with recessive dystrophic epidermolysis bullosa, offering new hope for a cure.
A British toddler with a devastating genetic skin condition has seen remarkable improvements after receiving pioneering gene therapy treatment, offering hope to families affected by the rare disease.